Sunday was much similar to Saturday just through in the good old Erbitux hangover day with it and it was pretty much a bummer of a day. The folks came over for a bit to hang out and to give Andrea a break from it all. She has been a real trouper but also needs some down time just to go to the store or get away from it. The feeding continued as it was and Monday we have plans to get some fluids into me again.
I forgot to mention that yesterday I got my first equipment and supplies for tube feeding. Saturday was a day to try to figure out all the how's and what's about the whole tube feeding thing. We were starting out on what they call gravity feeding. You pore it into the bag and let it run through the tube to the stomach. Sounds simple right? Where not talking gourmet meals here! For any of you who are parents or have baby sat young ones or every been barfed on my a toddler, that is basically what I am putting into my stomach. It's reminds of the similac or enfimil substitutes we used for the kids when they where little. The smell or just the thought brings nausea!!! Anyway, that's my diet theses days! The problem has been after all the barfing my stomach has shrunk so it isn't holding so much. I could probably get it stretched back out with a Chipoltle burrito but with baby food, not so much!
Saturday was sent trying to get this gunk into me in sufficient quantities to help get to some strength back up. It was fun!
Friday didn't start out so hot. The puking from the previous evening remained in the morning. Yahoo!!!! After that we figured I had to be dried out like no tomorrow so we talked with the nurses everywhere and cancelled RT for the day and headed in to RMCC - Parker to get some fluids hung on. I didn't think I was that dry but i was pretty much a dust bunny! It two almost two full bags of fluids before I was able to pee....not good! After that it was pretty much home and crash and burn.
Thursday started out fairly normally. The folks went with to RT that afternoon and the March came in like a lion. The gag reflex has gotten way out of control and is the bane of my existence. I know most of it is all in the head but this monster I am having a hell of a time slaying. The folks got to see how I got all hooked up and zapped and then got to see me puke my groceries out afterwards. The really bad thing about the puking is that the throat is already sore from all of this and then to puke really aggravates it.
Wednesday was a semi normal day for the crazy day of the week. I was able to get thought the Erbitux and through the RT that day with out loosing any of my groceries. Dr. Reznick was getting after me a bit due to the weight loose and not using the feed tube so we need to start working on that.
My apologies for not entering in any info lately. It has been a rough week but I think we're getting back up on top of it. For those of you who don't know, vomiting is the thing that I had in the world more than anything and unfortunately I think I have puked more in the last two weeks than I have in the last twenty years! Hence writing and driving the porcelain bus don't work to well together. I will try (with Andrea's) help to get a daily entry and get caught up this morning. Thank you all for you on going prayers, concerns and thoughts. They mean the world to me and my family. Thanks to all of those who has signed my guest book as well.
So....here we go. The wild a woolly!
